All of Us Publications

The “All of Us” Research Program

The “All of Us” Research Program

All of Us Research Program Investigators; Denny JC, Rutter JL, Goldstein DB, Philippakis A, Smoller JW, Jenkins G, Dishman E. N Engl J Med. 2019 Aug 15;381(7):668-676. doi: 10.1056/NEJMsr1809937. PMID: 31412182; PMCID: PMC8291101.

Development of Participant Provided Information Modules for the All of Us Research Program

Development of the Initial Surveys for the All of Us Research Program

Cronin RM, Jerome RN, Mapes B, Andrade R, Johnston R, Ayala J, Schlundt D, Bonnet K, Kripalani S, Goggins K, Wallston KA, Couper MP, Elliott MR, Harris P, Begale M, Munoz F, Lopez-Class M, Cella D, Condon D, AuYoung M, Mazor KM, Mikita S, Manganiello M, Borselli N, Fowler S, Rutter JL, Denny JC, Karlson EW, Ahmedani BK, O’Donnell CJ; Vanderbilt University Medical Center Pilot Team, and the Participant Provided Information Committee. Epidemiology. 2019 Jul;30(4):597-608. doi: 10.1097/EDE.0000000000001028. PMID: 31045611; PMCID: PMC6548672.

Mind the gap: resources required to receive, process and interpret research-returned whole genome data

Mind the gap: resources required to receive, process and interpret research-returned whole genome data

Crawford DC, Cooke Bailey JN, Briggs FBS. Hum Genet. 2019 Jul;138(7):691-701. doi: 10.1007/s00439-019-02033-5. Epub 2019 Jun 3. PMID: 31161416; PMCID: PMC6767905.

A Method for Integrating Healthcare Provider Organization and Research Sponsor Systems and Workflows to Support Large-Scale Studies

A Method for Integrating Healthcare Provider Organization and Research Sponsor Systems and Workflows to Support Large-Scale Studies

Campion TR, Pompea ST, Turner SP, Sholle ET, Cole CL, Kaushal R.

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:648-655. PMID: 31259020; PMCID: PMC6568055.

Implementation of Informatics to Support All of Us Enrollment Activities

Implementation of Informatics to Support the NIH All of Us Research Program in a Healthcare Provider Organization

Turner SP, Pompea ST, Williams KL, Kraemer DA Jr, Sholle ET, Chen C, Cole CL, Kaushal R, Campion TR

AMIA Jt Summits Transl Sci Proc. 2019 May 6;2019:602-609. PMID: 31259015; PMCID: PMC6568061.

Implementing a universal informed consent process for the All of Us Research Program

Implementing a universal informed consent process for the All of Us Research Program

Doerr M, Grayson S, Moore S, Suver C, Wilbanks J, Wagner J. Implementing a universal informed consent process for the All of Us Research Program. Pac Symp Biocomput. 2019;24:427-438. PMID: 30963079; PMCID: PMC6417826.

Understanding the All of Us Research Program: A Dialogue with Dara Richardson-Heron, MD

Understanding the All of Us Research Program: A Dialogue with Dara Richardson-Heron, MD

Fitzgibbons S, Treston C. J Assoc Nurses AIDS Care. 2018 Nov-Dec;29(6):949-952. doi: 10.1016/j.jana.2018.08.002. PMID: 30366570.

The All of Us Research Program: One size does not fit all

The All of Us Research Program: One size does not fit all

Newland, JA. Nurse Pract. 2018 Aug;43(8):11. doi: 10.1097/01.NPR.0000541472.39043.62. PMID: 29975219.

The New Era of Precision Population Health: Insights for the All of Us Research Program and Beyond

The new era of precision population health: insights for the All of Us Research Program and beyond

Lyles CR, Lunn MR, Obedin-Maliver J, Bibbins-Domingo K. The new era of precision population health: insights for the All of Us Research Program and beyond. J Transl Med. 2018;16(1):211. Published 2018 Jul 27. doi:10.1186/s12967-018-1585-5

Engaging populations underrepresented in research through novel approaches to consent

Engaging populations underrepresented in research through novel approaches to consent

Kraft SA, Doerr M. Am J Med Genet C Semin Med Genet. 2018 Mar;178(1):75-80. doi: 10.1002/ajmg.c.31600. Epub 2018 Mar 7. PMID: 29512940; PMCID: PMC5910200.