Policy on Stigmatizing Research

Below are some key points from the policy on Stigmatizing Research. Data users should follow the full policy, available for download at the bottom of this page.

The All of Us Research Program defines stigmatizing research as any research proposal, project, or question that has the potential to instigate or promote marginalization of, discrimination against, or loss of status by a person or group of people. Stigma may be inherent in the research design (e.g., the formation of a research question based on prejudicial biases) or a byproduct of the research findings (e.g., the interpretation of findings in a way that promotes negative stereotypes) and may be intentional or unintentional.

While complete elimination of stigmatizing research based on the use of All of Us data resources is likely impossible, the program takes steps in earnest to prevent resource use with the potential to stigmatize. Conduct of stigmatizing research using the All of Us data resources is prohibited, and the program reserves the right to penalize violators of this policy as appropriate.

Full policy is available here:

Download the file