Below are some key points from the All of Us Research Program Data User Code of Conduct. The full agreement is available for download at the bottom of this page.
The Data User Code of Conduct describes how All of Us Research Program data can and cannot be used for research projects. For researchers, this includes but is not limited to agreeing to the following terms. As an “Authorized Data User” of the All of Us Research Program data, you:
- Respect the privacy of research participants at all times.
- You will NOT use or disclose any information that directly identifies one or more participants.
- Use the All of Us data only for the purpose of biomedical or health research.
- Provide a meaningful and accurate description of your research purpose every time you create an All of Us Research Program workspace.
- Take full responsibility for any external data, files, or software that you import into the All of Us Researcher Workbench and the consequences thereof.
- DO NOT share your login information with anyone, including other authorized data users of the All of Us Research Program.
- DO NOT attempt to contact All of Us Research Program participants.
- DO NOT take screenshots or attempt in any way to copy, download, or otherwise remove any participant-level data from the All of Us Researcher Workbench.
- You will NOT publish or otherwise distribute any participant-level data from the All of Us Research Program database.
- You will NOT publish or otherwise distribute any data or aggregate statistics corresponding to fewer than 20 participants unless expressly permitted under the terms of the All of Us Data and Statistics Dissemination Policy.
- DO NOT redistribute or publish Registered or Controlled Tier data
- DO NOT attempt to link Registered or Controlled Tier All of Us Research Program data at the participant level with data from other sources.
- DO NOT use All of Us Research Program data or any part of Research Hub for marketing purposes.
- DO NOT represent that the All of Us Research Program endorses or approves of any research unless such endorsement is expressly provided in writing by the All of Us Research Program.
- DO NOT link Registered or Controlled Tier All of Us Research Program data at the participant level with participant-level data from other sources without the explicit, documented permission of the All of Us Research Program.
Full policy is available here:
