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Data Access Tiers
(page)A new study to better understand the health outcomes of sexual and gender minority people
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Mitchell R. Lunn, MD, MAS, FACP, FASN Assistant Professor of Medicine and of Epidemiology and Population Health at Stanford University School of Medicine HEALTH OUTCOMES…
Data Methods
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Younga “Heather” Lee, PhDPostdoctoral Research Fellow, Massachusetts General Hospital, Harvard Medical School, Broad Institute of MIT and HarvardSmoller Laboratory, Psychiatric & Neurodevelopmental Genetics Unit, Center…
Paulette D. Chandler, MD, MPHAssistant Professor, Medicine - Harvard Medical SchoolAssociate Physician, Medicine - Brigham And Women's Hospital Validating the hypertension algorithm Hypertension (HTN) is…
Julián Acosta, MDPostdoctoral Research Fellow, NeurologyYale School of Medicine Guido Falcone, MD, ScD, MPHAssistant Professor of Neurology; Director of Clinical Research in Neurocritical CareYale School…
Privacy Policy
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All of Us Research Hub Privacy Policy The following privacy policy discloses the information gathering and dissemination practices for the Vanderbilt University Medical Center (“VUMC”)…
All of Us aims to engage a cohort of 1 million or more participants that reflects the rich diversity of America, including populations that have…
Olveen Carrasquillo, MD, MPHChief, Division of General Medicine - University of Miami;Miller School of Medicine Principal Investigator - All of Us Research Program at University…
Nyia L Noel, MD, MPH Assistant Professor of Medicine Boston University School of Medicine Studying racial disparities in the prevalence of hypertensive pregnancy disorders and…
Aaron Abend, M.B.A.Executive Director, Autoimmune Registry; Managing Director, Prognosis Data Corp; Member, All of Us Advisory Panel Emily HolladayMasters in Public Health (MPH) student, The…
Elizabeth S. Burnside, MD, MPH, MS, FACRProfessor, RadiologyAssociate Dean, Team Science and Interdisciplinary Research, University of Wisconsin School of Medicine and Public HealthDeputy Executive Director,…
Data Snapshots
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Data Snapshots These aggregated, public-facing data snapshots provide an overview of All of Us Research Program participant characteristics and the types of data that we…
The All of Us Research Program requires authorized users of the All of Us data to conduct research that follows and conforms to the ethical…
Holly Garriock, PhDChief CohortDevelopment OfficerAll of Us Research Program, National Institutes of Health Jordan Smoller, MD, SCDAssociate Chief for Research, Department of Psychiatry, Massachusetts General…
All of Us is committed to engaging a cohort that is demographically, geographically, and medically diverse. Specifically, these are the populations the program considers underrepresented…
The data in the All of Us Data Browser comes from participant electronic health records and from survey answers and physical measurements taken at the…
Researcher Workbench
(page)Survey Explorer
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Survey Explorer Participants in the All of Us Research Program respond to surveys spanning a variety of topics. The program has tested each survey for…
Drug Exposures
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ADVILMED, ALLBUPEN, ALLIPEN, ALLIPEN FOR CHILDN, ALLIPEN FOR CHILDREN, ALOPAN, ALUPEN, ANTARENE, ANYFEN, ARTICOOLFEN, AUSTIN IBUPROFEN, Act-3, Actiprofen, Addaprin, Adedolor, Advel, Advil, Advil Plus, Aifeile,…
Below are some key points from the Publication and Presentation policy. Data users should follow the full policy, available for download at the bottom of…
The All of Us Researcher Workbench uses Google sign in for all accounts. This requires users to authenticate their account with Google and set cookies…
Data Sources
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Data Roadmap In the coming years, All of Us will enroll more participants and make more types of data available, as funding allows. Data availability…
Data Access Framework
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Below are some key points from the Data Access Framework. The full document is available for download at the bottom of this page. The Data…
Medical concepts are similar to medical terms; they describe information in a patient’s medical record, such as a condition they have, a doctor’s diagnosis, a…
Dr. Stephanie Cook, PhDNew York University James Weldon Johnson ProfessorAssistant Professor Department of Social and Behavioral SciencesDepartment of Biostatistics Director, Attachment and Health Research Lab…
There is no cost for researchers to register with the All of Us Research Program and to begin working within the dataset. Researchers will incur…
About the Research Hub
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About the Research Hub The All of Us Research Hub matches a broad research community with a diverse set of research participants. Its goal is…
Researchers as Partners
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Researchers as Partners We believe a diverse and broadly accessible data resource can help us build a healthier future. The All of Us Research Program…
Data User Appeals Policy
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Below are some key points from the All of Us Research Program Data User Appeals policy. Data users should follow the full policy, available for…
The All of Us Research Program employs Observational Medical Outcomes Partnership (OMOP) Common Data Model Version 5 infrastructure to ensure feasibility and standardization across electronic…
Many participants are invited to enroll by one of our partner health care provider organizations, which include large academic medical centers, VA medical centers, and…
What is RxNorm?
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RxNorm is a naming system for all medications available in the U.S. market. The name of each drug is a compilation of its active ingredients,…
Researchers should always check with their local institutional review board to ensure compliance with local requirements for conduct of research. We have provided the template…
The Data Browser includes calculated genetic ancestry associations of variants. Genetic ancestry shows the part of the world where an individual’s ancestors may have lived.…
What is OMOP?
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The All of Us Research Program employs Observational Medical Outcomes Partnership (OMOP) Common Data Model Version 5 infrastructure to ensure feasibility and standardization across all…
There is no cost to access the Researcher Workbench. Computation costs for analyses, however, may be incurred through Google Cloud Platform. The All of Us…
Data & Tools
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Yes, all participants consent to participate in the All of Us Research Program. To learn more, visit: https://www.joinallofus.org/what-participants-share
What is LOINC?
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LOINC stands for Logical Observation Identifiers Names and Codes. LOINC is used by health provider organizations to code laboratory test orders and results. For example,…
What is SNOMED?
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SNOMED stands for Systematized Nomenclature of Medicine. SNOMED connects the various terminology, medical codes, synonyms, and definitions used among different electronic health records (EHR). For…
SOURCE - electronic health record (EHR) data enters our system with terms and codes for conditions, drugs, and procedures using “source vocabularies”. Source vocabularies are…
What are vocabularies?
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A patient’s electronic health record (EHR) may contain medical information that means the same thing but may have been recorded in many different ways. For…
One of the steps All of Us takes to protect participant privacy in the Data Browser is to round all participant counts to the nearest…
Participant privacy is protected in multiple ways. Personally identifiable information (PII) is any data that could potentially identify a specific individual. All PII, such as…
Participants in the All of Us Research Program respond to surveys spanning a variety of topics, including demographics, health care, and lifestyle. Each survey has…
All of Us supports three discrete activities to support COVID-19 research: COVID-19 Participant Experience (COPE) Survey Antibody Testing: All of Us is supporting antibody testing…
SAS must be licensed for use, so many researchers are used to paying for this license. At this time, registered researchers do not need to…
Privacy & Security Protocols
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Privacy & Security Protocols The All of Us Research Program uses high-quality security technology to help keep participant data safe. The data that participants give…
Research Roundup 10/23
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Researcher Workshops and Public Input The All of Us Research Program is collecting data with unprecedented depth and diversity. We are using many tools to…
Research Roundup 6/23
(research_hub_updates)Register
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The Researcher Workbench features several tools to support data analysis: Workspace: A workspace is the place to store and analyze data for a specific project.…
Below are some key points from the policy on Stigmatizing Research. Data users should follow the full policy, available for download at the bottom of…
Below are some key points from the All of Us Research Program Data and Statistics Dissemination Policy. Data users should follow the full policy, available…
No. The All of Us participant community will reflect the diversity of the United States, but cannot be described as a representative sample. Participants are…
Unlike many research studies that focus on a specific disease or population, the All of Us Research Program will provide a national research resource to…
The Data Browser is an interactive tool that allows you to learn more about the data collected as part of the All of Us Research…
What are analysis files?
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Analysis files are where researchers can perform comprehensive analyses on cohorts and data sets using programming languages R, Python, or SAS.
Yes. As a condition of your data access, you must inform the program of any upcoming publications resulting from access to All of Us Research…
The Resource Access Board (RAB) is charged with reviewing and auditing research projects to determine whether they may potentially stigmatize research participants or violate the…
The All of Us Research Program is committed to being transparent with its research participants about the purpose of the research that uses their data.…
The Research Projects Directory will display your name, institution, and role. This information will be displayed along with the Research Purpose Description you provided for…
Accessing the Researcher Workbench data is easy and takes only a few steps. If you are interested in applying for Researcher Workbench access, please visit…
The All of Us Data Dictionary provides researchers with the most robust description of data elements available within the Researcher Workbench. Between May 2020 and…
Research Projects Directory
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The Research Projects Directory includes information about all projects that currently exist in the Researcher Workbench to help provide transparency about how the Workbench is…
